Many have noticed I have been quiet or less present and some worried about what is wrong!
To be honest, last week has been incredibly rough. The post-Radiation fatigue picked up, then I started running high fevers and ended up in the ER with a major work up and scans that showed that liver looked even worse, put on antibiotics, the next day I developed excruciating pain in my right shoulder that had me reduced to tears and wails.
Then I was drugged up for pain after which I received chemo. For the past four days I have done nothing besides taking naps or respond to a text here and there. Now I have mouth sores so I have that to deal with. Tomorrow I get my second dose of chemotherapy.
It has been overwhelming to just take a pain free breath with my liver mets causing pain with every deep breath.
I wish I could say things are great but they have not been. I don’t like to post complaints on holidays when everyone is jovial and trying to have a good time but when I am quiet most assume the worse ( which this time is kinda true).
It has been a tough year. Last thanksgiving I was post-op from ovaries surgery. The new year came as I was running fevers from liver ablation. A craniotomy and many failed treatments later, here I am . The average survival with skull metastasis is 10 months ( so I am few days short of beating those odds)
I am trying to keep hope and stay the course but there are times it takes the best of me. I lose motivation.
It is a lot to deal with along with being a wife and a mom. There are days the reality of my illness sinks deeper and what may happen and there are days I brush it off and go my way.
However I do notice physical decline and to deal with that I am starting rehabilitation later this week to get my strength back if I can.
This is a long bumpy road and I am thankful for all of you who are willing to listen.