Left Boob Gone Rogue: My Life With Breast Cancer https://www.amazon.com/dp/1729070817/ref=cm_sw_r_cp_api_PIe5BbBNTF48M
As I have said often, the only thing certain with cancer is uncertainity. . Last year, I was immersed in it. Different kind of challenges kept popping up , treatment and other wise.
I was being treated with Halaven ( Epirublin) which although kept me stable for 3 months, casued me severe neuropathy. I took a few falls and my balance was ruined. For a period of time I was using a walker and periodically used a wheel chair.
My blood sugars went completely out of sorts and they contributed even more to the lack of balance.
To top it all , I was running unexplained fever.
All of this started early June and did not abate until end of August completely. The Halaven stopped working and it was time to move on to another agent. This time it was Navelbine which I am currently on.
In between all this, the part of my skull that had been operated upon started to hurt. On MRI , they founf three spots in need of radiation. I went through five sessions of high intensity radiation during which chemotherapy was suspended.
Now I am back on chemo but my liver seems unhappy and I get pain from it off and on.
The challenges have been numerous but for now I am working hard to deliver my book “Left Boob Gone Rogue” in your hands this month. So stay tuned.
Also the blog has been update and will be up and running. Please leave in comments what you would like to hear about.
“You are as beautiful as you feel. It took me a long time to understand this.
Now through Cancer I still feel beautiful even though it has taken a lot in terms of physical beauty or what is considered as such in our culture.
Many times women feel ugly without their hair, eyebrows and lashes. But that is why we have wigs and fake lashes and brows.
They hide because they don’t feel desirable and feel no longer feminine.
Skin takes a hit during chemo, it stains dark sometimes and we may get a grey hue. Hands feet can darken.
But there are ways to offset all of this.
I keep getting told how beautiful I am and I appreciate it.
But I work at it.
Here is my pic with no make up and now wig.
I am putting it out there because I am no longer afraid of what I look like, what matters is who I am!” Uzma Yunus
No make up no filter
The life between scans continues.
Another trimester ended and scans are being done tomorrow.
It has been a busy three months full of living, experiences and family time.
Grief has been a companion as time approaches fourth month without my father in this mortal world.
Have been busy drawing and painting which has been therapeutic and healing.
Life remain perched on a house of cards and one bad scan can collapse this outfit but until then to me it seems a castle of hope.
It was chemo day today. The whole routine which starts with anxiety the night before, mental agony of the week of side effects, lidocaine on the port, a stick , a blood draw and then wait for the results. A time span of starting at other bald women who have gone to different lengths to cover their baldness, of looking at husbands watching You Tube videos to keep themselves entertained, chatty girl friends and some anxious older women. Then finally you get seated in the chemo chair. Now its staring at others who are either getting chemo or will get it. You never know what you get this time, the nosy immigrant grandma who thinks its okay to ask your life story, the pleasant young professional or the weepy lady who is still not recovered from her diagnosis. Its as uncertain as cancer it self.
Among all this chaos and uncertainty, all a patient can rely on is care and comfort from the nursing staff and at the minimum, professionalism and understanding that this is the group of people whose lives are on hold or permanently wrecked by cancer.
This is a group of people who are trying to stay afloat in an unpredictable world filled with worries and fear. Empathy is desperately needed and emotional uplifting is very helpful.
Most patients after their pre-medications are dozing in and out of sleep. Some just want to close their eyes and some make small talk with others. Over all the set up is deserving of peace and quiet with an underpinning of hope and comfort.
I was sitting in my sub room with two other women as Halaven was dripping into my blood as I heard a loud piercing laughter. I noticed it to be one of the oncology nurses sitting barely three feet away at the laughing hysterically at the nursing station. It wasn’t just one loud laugh but a whole three minute laughter fest at a volume that would have pierced through a closed door.
I wondered about how other patients related to this lack of professionalism, since as a physician-patient it made my blood boil. How can such a thing occur in a patient care area? If I were the attending and had walked in at that moment, nothing short of a written complaint would have satisfied me.
I have great respect for nursing in general and especially oncology nurses who do a very difficult job. However certain lines must never be crossed and one for sure is unexplained loud laughter in patient care areas. Break rooms are perfect for staff to go and lighten the load that comes with their emotionally draining jobs.
Today for me, and I suspect for some other fifteen patients in that area, laughter wasn’t the best medicine but a rather toxic display of lack of empathy for all those who were receiving treatment.
Have you encountered unprofessional behavior from someone your oncology team? and if so, how did you feel and react?
Instead of laying with cold machines
I wish I were home with my little girl and keeping her warm on her sick day
I wish this day were my own
But Cancer grabs these hours
That I am trying to gather
To put together the best I can
To make it a life, nurturing and full
A mom with cancer
A Metastatic wife
An unemployed doctor
A writer with lament
Cobble up the identities
In a string
Looking for a little hope
In radiographic scans
Every ninety days
Stop and go
Asking gods to grant me
A little more
A mom with cancer
A Metastatic wife…