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Weekly Round Up
Weekly round up of breast cancer blogs
My message to my friends today!
Today is a very significant day , no , not because it’s Amazon deal day. It’s a very important day for me.This day propelled me into action and a new course of life. This day I got , a not so gentle reminder that life is short and that I had needed that reminder. Today exactly two years ago, the breast surgeon said, ” I am so sorry!”
Now every time , I look in the mirror I realize that life is short but it’s richness is what I still have control over. My days are now measured in quality, smiles , gratitude, good deeds and experiences. The seconds, minutes and hours matter but I have no say in the total count. So rather than obsessing about it, I will continue to make the best of what I can change and rest I will accept with gratitude. Each waking moment without pain is a gift , every day without fear is a blessing.
Two years ago, I was unaware of what resided inside of me until I had to summon all that I had , to fight the illness called Cancer. My life since then has followed this post cancer trajectory with little victories along the way but what I value most is how it has changed me for the better.
When they said don’t sweat the small stuff, I never fully grasped it because I had the option of being stressed and neurotic. After cancer, however, I try and live it every day…if I do sweat the small stuff, the stress will kill me. I understand that. I value a good night’s sleep more than a late movie or web surfing. I take care of myself. I say ” no” more often and take my emotional energy where it’s valued. I sometimes deviate but I keep trying. Friends mean so much even the ones that I have never met. Friendships are truly the essence of life. I couldn’t have gone through the last two years without friends.
I want to thank everyone for being there for me. I think there is lots of goodness in the world and that above all lessons learnt in the last 2 years, most important one is that I am one very lucky person. Life is ever changing, it’s how you appraise the change and what you make of it. And if I could, I would now break into the “Let it go ” song and start running for maximum impact????????
Happy Birthday to Me!
Second cancer anniversary, reposting from last year
15 random things about me
Responding to Nancy’s point ‘s blogging challenge:
1. I lived at home till about 25 and then picked up and moved alone half way across the globe.
2. I have circled around the earth once.
3. I can burp on request.
4. I can read four languages.
5. English is not my first language.
6. I hate mathematics
7. I draw and sketch.
8. I don’t know how to swim but recently started to learn.
9. I am allergic to Adriamycin
10. I hate peeling potatoes and cutting cantaloupes
11. I cannot stand the smell of a boiled egg.
12. I dont have my gall bladder.
13. I enjoy talking to strangers and make friends easily
14. I enjoy traditional Pakistani and indian food and cook it too
15. I dont have a middle name
Slow Down
It’s a rather typical spring day in the Midwest. The sun is out and it appears deceptively warm. It’s the kind of day that you want to step out without the much needed jacket in this part of the US. The wind however is blowing making it feel much cooler.
My kids and I want to go to the “lake”, a small made lake in our neighbor hood, for a “treasure hunt”, what an adult would call a nature walk. It’s a quiet Sunday, the neighbors are perhaps at church or having dropped of the kids at grandparents house are out at the mall.
My almost 8 and 4 year old are armed with buckets to save the “treasures’ in. It is serene and relaxing by the lake. Ducks and geese are making haphazard tangents, some novice fishermen trying their luck. Being in touch with nature feels so good.
My kids scan the shrubs and brush looking for treasures.
My son screams with excitement, and he has found a bottle cap. Nothing fancy, just a white plastic bottle cap. My daughter now gets more vigilant.
We see the remains of the “controlled burn” of the brush around the lake. Yes any uncontrolled unhampered growth is a lot of trouble, who knows more than a cancer survivor.
I hear my daughter celebrating a beautiful rock she found. At 4, everything is amazing and full of wonder. Rocks, pebbles, odd shaped stones are all treasures. Blessed is a life that sees stones as valuable and this innocence is so precious.
Before cancer, I may have spent this Sunday obsessing about what to cook, mulling over what summer camps to sign up for and organizing the house but post cancer I am out walking with my kids looking for treasures. I realize that they are learning with me to embrace nature and appreciate life. It makes me smile.
They aren’t at Kumon or at a gymnastics class or learning some craft but they are learning a skill, which we adults sign up for in retreats, letting go and relaxing, finding pleasure in everyday things that are all around us.
My daughter spots a turtle and there is sheer excitement in her voice. It’s a small turtle sitting on a branch sprouting out from the lake.
By now their buckets have an unidentifiable shiny object, a half burnt Sippy cup, a ball and something they are calling a “fishing thingy”.
A mom is pedaling with her son on their bikes. We point out the turtle to them.
She remarks ” Look (son) we are going so fast , we are missing out on all the good stuff!”
I agree. Cancer has slowed me down but the slowing down is not so bad either.
How are you doing now?
How are you doing now?
” How are you doing now?” is a question, I get asked with a fair amount of consistency. The sentence feels jagged and the “now” a bit piercing. Don’t get me wrong, I am thankful that I have well wishers who are interested in my well being but it’s a question that provokes a certain melancholic grief. It reminds me of “then” when things were particularly rough and excruciating .A treatment storm that grabbed me and swirled me around with dizzying intensity and then abruptly let go of me. My head is still spinning and my feet are still unsteady but I am out of the storm. No longer safe from the anxiety of another one that may creep up on me some day but the initial storm has passed.
The now, this. This the life after cancer.
I am quickly approaching the anniversary of the end of all major treatment towards the end of this month. I am still trying to figure out , how I am doing now?
It’s hard to not compare myself to where I was, about 2 years ago. I am considered “fresh” or “new” among the survivors who are many years out. Some are living life with Stage 4 cancer, some are quietly happy for the passage of time without major storms, some have seen more than one turmoil. We all however, live in fear. A fear that is an inevitable part of living after treatment, now.
The fear that haunts every time there is an ache or pain. It is ,but of course cancer, is what your mind says. Every back pain is cancer in the spine, never mind the pulling and lifting the day before. Every dizzying spells is metastatic disease of the brain and every bout of indigestion may the omen of cancer in the liver. Even though I am a physician, I am not immune to this post-cancer neuroticism.
At the heart of all of this, we cancer survivors, live with loss of control over our bodies. We have been subjugated by our bodies, rebellious and rogue. We despise that.
We , then, turn to things that will help us tamper that fear. Food usually becomes a bit of a preoccupation. It gives us a sense of control.” I can choose what I eat”, I can’t rid myself of the fear but I can eat the “anti-cancer diet”. Suck it up cancer! I am in charge.
There are anti inflammatory cancer diets and sugar free diets. All efforts directed towards that chance that the cancer won’t come back. In my heart I know that it’s just hopeful indulgence. Although dietary factors certainly affect the incidence of cancer but if 16 cycles of hard core chemo drugs failed to rid me of the cancer, my kale smoothie is unlikely to turn my fate.
But I do it any ways. I try to eat the 6 servings of fruits and vegetables every day. I regularly take my Tamoxifen. In entire last year there were 6 doses I somehow missed. For the rates of medication compliance in literature, its pretty darn good.
I go to yoga and walk regularly. I have lost all the extra pounds that had befriended me during the steroid fest with chemo. I try to minimize stress and sleep at least 7 hours every night. It’s all healthy but will it prevent a recurrence, I don’t know. No one can answer this question and that’s why I keep doing it, my hopeful indulgence.
Taking supplements get tricky. I worry about supplements interfering with the absorption and action of Tamoxifen I take. Eastern medicine, alternative things, acupuncture, all sounds like wonderful ways to deal with the fear head on.
When treatment ends, even though there is a great relief, there is a parallel anxiety of nothing is now being done to fight with the cancer anymore. You are on your own. To pick up and clean up after the torrid storm.
My physical energy is slowly improving. Yes post treatment progress is slow, painfully slow. Every day is a challenge to stay energetic. I work two days a week and feel quite exhausted by the evening on my work days. I hurt overall sometimes, just a low grade achi-ness. I sometimes get overcome by saddening emotions and I feel like saying ” I don’t want to live like this”, “I don’t want this monkey on my back” “I don’t want this shadow behind me every minute of every day”.
Sometimes, I wish I could be in denial. I wish I could pretend it’s all over and close the window and slam the door shut. I wish I could be sure that I have indeed survived. But with cancer, you dont have such emotional luxuries. It’s there. You live it every day. the reality of cancer.
So how am I doing now? I am managing. I appear to do be doing everything I used to just on a constricted scale. The ever present fear, is a hole in one’s emotional reservoir and there are days I feel emotionally depleted. Then, there are days when everything feels beautiful and I am thankful for being alive.
It’s an ever changing emotional landscape in the mind of a cancer survivor.
I am trying to carry on with grace what life has handed to me, one day at a time.
I continue my grieving process. I have lost the privilege of calling myself healthy, I grieve the ability to plan retirement without a little voice saying “let’s hope”, I am no longer confident that I will see my children’s high school graduations or weddings, heck, I fantasize being old and in a nursing home.
I could be “positive” as I am told to be, but these thoughts stay in mind head. The only time they will become dormant is when I am far, far away from the diagnosis date. They will never disappear but may be less audible.
So this is me , now and I think I am doing as best as I can. I am being patient, I am being thankful, I am trying to not take a day , a moment for granted, I stop and smell the roses and the coffee and my daughter’s hair. I am trying.