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The Mixed Feelings Book Sale

Even before her own breast cancer diagnosis, my wife Uzma began having mixed feelings about Breast Cancer Awareness Month. Those feelings got even more mixed once her cancer came back and became stage 4. “I don’t mind the fundraising,” she explained, “But I sort of think that much more needs to be spent on funding research into treatment than we are doing now.”

She agreed that awareness campaigns are important to keep educating women about the importance of screening mammograms. According to the CDC, more than one-third of women over the age of 40 report not having a mammogram in the past two years. The message of journal articles like this one, published after Uzma’s death, must be summarized in simple language for all women. Women with dense breasts need education on the poor value of mammogram screening for them. Some women need sensitive education to help them overcome their anxious avoidance of breast cancer screening.

In 2011, two years before her cancer diagnosis, Uzma discovered that the charity then known as Susan G. Komen for the Cure was only spending 15% of its program funds on breast cancer research. Since then the charity has dropped the phrase “for the Cure” from its name. However, the non-profit and its affiliates still host hundreds of “Race for the Cure” events every year. Komen has since increased its funding on research to almost 29% of its program funds. Uzma believed that as the 800-lb giant in the breast cancer charity universe, Komen has a responsibility to spend much, much more to fund treatment research.

Since then we found other organizations, smaller than Komen, that spend a greater part of their program expenses on research. Breast Cancer Research Foundation spend 100% of its program funds on research. Metavivor, a much smaller charity, spends almost 90% of its program funds on research focused on stage 4 breast cancer. Komen’s size gives it an outsize impact. For that reason alone, it remains an organization worthy of our support. But those of us who want more of our support to go towards research must explore other options.

Those who want to keep funding advocacy and education ought to consider how to make those activities more focused. For example, research studies since at least the 1990s show that mammograms are falsely negative twice as often in dense breasts compared to less dense ones. Negative mammograms will give a false sense of security to some women with dense breasts. Focusing at least some of the awareness funding on the issue of dense breasts is worth considering.

As October approaches, I ask myself, “Uzma wrote a book to help people gain a visceral understanding of the breast cancer experience. What would she do with her book if she were still around?” I think she would make people ponder how to channel their donations according to their interests — awareness vs. research. She would reduce the price of the book for breast cancer awareness month. She would urge everyone who buys it during this time to donate the money they save to their favorite breast cancer cause.

So here it is: Both the paperback and Kindle versions will sell at a reduced price through October. I am calling it the Mixed Feelings Book Sale partly because of Uzma’s mixed feelings about October. And partly because of my mixed feelings about helping get her book out without her on my side.

How You Cure Breast Cancer According To Google

If you rely on google:

This is how you cure breast cancer:

Take a handful of kale and add turmeric to it then put it in carrot juice and use it as enema for 15 days then stand in a yoga pose for another five days then massage cannabis oil all over and slip and slide for two days followed by organic ground coffee enemas until you successfully shit out all the cancer. There!

Just stay in downward dog all your life with your head in coconut and avocado oil and have someone sprinkle a light dusting of matcha and green tea over you.

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Date: 19 September 2017

[Commentary by Dheeraj Raina: This was a Facebook post of Uzma’s. Read this to understand my approach to turning some of Uzma’s Facebook posts into blog posts. Upon learning that she had stage 4 cancer, some people would start asking her what she ate or start giving her unsolicited advice about what she should eat. Or should have eaten to prevent cancer. It bothered Uzma to no end. She believed in a holistic approach to health, took yoga classes, saw an integrative medicine doc, but never ever as an alternative to standard treatment. Earlier in the same year, as the following Facebook post, her frustration led her to write one of her popular posts, Diet Crazy: A Rant. This is along the same lines. I bet somebody had given her diet advice the same day.  The last line, though, is illustrative of the power of Uzma’s writing. She can make you conjure up images that make you feel what she is feeling. My addition to the post is in italics.]

 

Kindle Edition Of Uzma’s Book Is On Sale.

If you like ebooks, this might be the month to buy Uzma’s book when it’s deeply discounted on all Amazon sites (US and international).

If you have friends who like ebooks this might be the month to recommend it to them.

Did you know that you don’t need a Kindle device to read a Kindle book?
You can read it on the Kindle app for iPhone (or iPad) and Android.

Note however that on iPhone and iPad you can only purchase the kindle edition by going to Amazon through your browser (Safari). Once purchased, it downloads automatically to the Kindle app.

This discount only applies to the Kindle edition and is only for this month.

Help spread the word!

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 Why I Keep Writing

[Commentary by Dheeraj Raina: This post is published under Uzma’s byline because it’s a previously unpublished post of hers. To read my approach to her unpublished work, read this. I know Uzma wanted to write a longer post about this. She was unable to complete putting many thoughts on paper because of the unpredictable ways in which cancer and its treatment interrupted life repeatedly. She started writing for herself. Over time, she heard how much her writing helped others. After learning that she never could ignore the obligation to write for the sake of others. That’s why she felt a great emotional need to complete her book before death came.]

From my inbox :

“Hi Uzma–

I want to introduce myself as a fellow warrior. I’m a physician and saw your blog thanks to a Facebook group yesterday. I read your Carpe Diem/Crappy Diem post and I have had the exact same musings. I am (age) yrs old and was diagnosed with stage 4 breast cancer last May. Initially, I was quite ill (liver mets). I have been back to work since September (was still in my initial chemo at the time) and am back in treatment (now near weekly chemo because things got worse in January). I’m feeling pretty great, all things considered. I have a husband and a young child.

Anyway, I wanted to say hello, and to let you know that I’m here working, alongside you and fighting. And actually, I’m fighting back tears after reading your blog posts, which contain many things I have thought about for the past year. Thanks for writing and making me feel not so alone as a doc and mom.”

We became friends. She is currently in hospice and the inevitable is looming and as I grieve I hold on to her words.

Religious Platitudes For Cancer And Other Serious Illness

[Commentary by Dheeraj Raina: This was a Facebook post of Uzma’s. Read this to understand my approach to turning some of Uzma’s Facebook posts into blog posts.  I have edited this post’s formatting. Words I have added are in italics. Enjoy!]

* * *

This is what I hear over and over again.

I believe in prayers and miracles but these thoughts seem to have a pattern and classic content.

I hope for remission, I pray for recovery. But people do get better and some don’t.

Muslim platitudes for Illness:

1. When first sick

May Allah heal you, I will pray for you.

2. Illness prolonged

It’s not an illness , it’s a test. I will pray for you.

3. Still sick

Duas (prayers) change things. Keep praying.

4. Still quite sick

Shifa (healing) is in hands of Allah, keep asking.here are these things you should recite every day.

5.Still sick and worse.

Miracles happen all the time. I am praying for a miracle. Keep reciting what I sent you.

6. Patient suddenly better for one day

I told you never give up Hope , see how things change when you pray.

7. After 24 hours – Still sick, worse and may be terminal.

Death is inevitable. Whoever lives, will taste death.There is time to repent. Stay strong, keep faith .

8. Deathly ill

Now who can really interfere with Allah’s plans. He decides what is best. There is always a reason why prayers aren’t accepted. They wash away sins.

9. Died

We came from Him and shall return to Him. I will pray for the departed soul.

10. Someone else gets sick.

Rinse and repeat.

Coming Soon: Video Event

Uzma had planned to do a Facebook Live event on December 9, 2018. It was to be the start of a virtual book tour. Alas, it wasn’t to be. Her gradually worsening health took a sudden and quick turn for the worse on December 4. She ran out of time.

In her honor, I plan to do what she couldn’t. But I can’t do a Facebook Live event. Not yet. Yes, I become nervous when I don’t know what I am getting myself into. Like most humans, I find being physically and emotionally there for my dying spouse less nerve-wracking than being in front of a live camera. So, I will do a recorded video and hope to upload it on April 9, four months after Uzma’s original planned date for the live event.

I will read something from Left Boob Gone Rogue: My Life With Breast Cancer. I will add some commentary. The screenshot (see below) of Uzma’s announcement about the planned December 9 event shows, she wanted to answer questions from her readers. Therefore, I intend to answer a couple of questions. But since this will be a recorded video, my request to you, her readers, is to write all the questions you would have wanted to ask her in the comments below this post. Of course, it won’t be the same as her answering them, but hopefully, it will work for you all.

 

Alcohol & Breast Cancer – A Link Worth A Spotlight

Most of us know about the cancer-risk of cigarettes but are utterly unaware of the cancer-risk or alcohol. Our liver converts all alcohol we drink, whether beer, wine or hard liquor, to acetaldehyde. Acetaldehyde is a chemical that is a known carcinogen (cancer-causing chemical) in humans. There is no controversy about this among scientists.

How much does alcohol contribute to the incidence of cancer in our society? Drinking alcohol increases the risk of cancers of mouth, throat, larynx (voice box), esophagus (food pipe), colon, rectum, liver, and breast.

Narrowing our focus to only breast cancer — what this blog is about — reveals that every year about 15% of breast cancer cases and deaths are attributed to alcohol. That’s about 35,000 new cases of breast cancer and about 6,000 deaths. As a comparison, between 5-10% of breast cancer cases are due to BRCA mutations.

This is why this study — A comparison of gender-linked population cancer risks between alcohol and tobacco: how many cigarettes are there in a bottle of wine? — is a useful one. It quantifies a little-known risk in terms of a well-known risk.

The study concludes that one bottle of wine per week is associated with an increased absolute lifetime risk of alcohol-related cancers in women, driven by breast cancer, equivalent to the increased absolute cancer risk associated with ten cigarettes per week.

One bottle of wine per week is associated with an increased absolute lifetime risk of alcohol-related cancers in women, driven by breast cancer, equivalent to the increased absolute cancer risk associated with ten cigarettes per week.

That’s okay for wine, but what about other kinds of alcohol?

To better understand and communicate the risks of different kinds of alcohol, addiction specialists convert all alcohol to “standard drinks.” One standard drink is the amount of any drink containing 14 grams of pure alcohol. A bottle of wine has 5 standard drinks. Doing basic math, this study is telling us that in terms of cancer risk in women, driven primarily by breast cancer, 1 standard drink is the same as 2 cigarettes.

1 standard drink is the same as 12 ounces of beer, 5 ounces of wine or 1.5 ounces of hard liquor.

So, how many cigarettes did you smoke this week?


Uzma Yunus, MD, the creator of this blog died on Jan 30, 2019. About three months before her death, she published her book Left Boob Gone Rogue: My Life With Breast Cancer, which as of this writing has 183 views on Amazon, each one of them a 5-star review. Her husband, Dheeraj Raina, MD, now maintains this blog.